Comments on TiffanyAndLupus: The Lupus Misconception (HAWMC)- Day 10

Thank You for making me feel like Im not alone. *H...

2011-05-17T08:50:27.235-04:00

Thank You for making me feel like Im not alone. *Hugs*

Thank you my loves! You're feedback and heartf...

2011-05-14T21:05:48.892-04:00

Thank you my loves! You're feedback and heartfelt comments make my writing make sense!

If you can feel like you're living it with me, then I know I'm expressing myself properly! Stay strong lovies & remember that you are warriors. Don't hesitate to use posts from here or others to help others around us understand how we're feeling! <3

TiffCakes...my friend and my sister, the feeling i...

2011-05-06T13:16:22.695-04:00

TiffCakes...my friend and my sister, the feeling is indescribable when u realise that its not just you are not alone, but that there is someone else who feels the exact same things you do. Beautifully written. Never stop raising ur voice:)

~Shoy

Thanks for reminding me to be a brave butterfly :)...

2011-05-06T09:01:40.243-04:00

Thanks for reminding me to be a brave butterfly :)

Tiffany, all I can say is WOW...you just descibed ...

2011-05-04T23:48:28.602-04:00

Tiffany, all I can say is WOW...you just descibed my every morning and a lot of times my entire day or days! This is something only my loved ones at home have seen and gone through to understand. I sometimes think it's fortunate others don't have to see that side of me, however when I hear how great I look or you don't look like you're that sick or oh you're better now...that's my favorite one, thats when I wish they only knew what my loved ones and I know! The next wish is that my loved ones didn't have to know!
Jen

Tiffany, once again you put into words what so man...

2011-05-04T15:31:54.655-04:00

Tiffany, once again you put into words what so many live... silently, and sometimes hidden with smiles that belie the struggles. How good we look when others see us is a testament to the grace and fortitude and strength it takes to cover-up and go on. You my friend... are one of the good ones :)

I really like how you put that .I have lupus too a...

2011-05-03T17:39:04.718-04:00

I really like how you put that .I have lupus too and it is a really big struggle to get out of bed or when i know i am not feeling good ,but everyone looks at you like ya right. I think people need to really be educated about lupus because each person is different and they deal with having it. So it is no wonder why lupus is so misunderstood. Thank you for reminding us that we are only capable of doing as much as our bodies let us
Sincerely,
Mary T

Your story is inspiring and I must agree...alot of...

2011-05-03T16:28:51.188-04:00

Your story is inspiring and I must agree...alot of people, and I mean alot....say they heard of lupus but alot of people do not realize the daily tasks we have to conquer...all based on how the joints are doing as soon as we awake

Thanks Tiffany, for more than just inspiration. Yo...

2011-05-03T00:58:40.714-04:00

Thanks Tiffany, for more than just inspiration. Your morning trek to the kitchen sounds like mine. I didn't know where all the pain was coming from - I guess the lupus is becoming more active.

"... the pain has become monotonous. It never...

2011-05-02T12:11:13.561-04:00

"... the pain has become monotonous. It never quite leaves you, curling around each muscle, joint, limb until it is intertwined so deep in your being ... and you cannot distinguish what it means to be free of agony. Seconds stretch into minutes which feel like hours, ..."

exactly. beautifully written.