November 20, 2011

Dear 18-Year Old Me...

Today's Wego Health Writer's prompt is: Dear 18-Year Old Me...

"Write a letter to yourself when you were 18. Be sure to tell yourself what to do more of, what to do less of, and what you have to look forward to in the next few (or several) years"-Wego Health
                                                                       Hey Brace-face!

Yea, you're so NEVER going to live that down; not never! is pretty cute that you attempt to be "cool" by color coordinating your brace bands every month and yet still I don't know if anyone else besides you actually think it's cool; ha!

I can't believe you're taking so many honors and advanced placement classes. Uber proud of you! Though how you manage to make it through an hour of advanced world history is beyond my imagination.

Now listen up, I've got to get this message across before that white light at the end of the tunnel disappears.

These next points are crucial to your future:

-Get a job and save money for college textbooks
-Go to college when YOU'RE ready not when someone else thinks you should go.

-You know those "rain-pains" you've been having in your wrists and knees? When the doctor laughs in your face because you mentioned early arthritis; tell him 7 years later you could have a lupus diagnosis.

-Smile more, write more, love more, and never stop singing!

-Eat more VEGETABLES, drink more water, and take daily vitamins. (Your body will thank you later!)

-Stop perming your hair; embrace it's natural texture.

Enjoy every moment and treasure every memory!

Oh those days of being young and careless! If you could go back in time and leave a letter to your younger self what would you write? You only get one chance so make it count!

: This post was written as part of NHBPM – 30 health posts in 30 days:

November 2, 2011

Days of Our Lupus Lives!

Today's Wego Health Blog Writer's prompt is: My TV Show

"Your blog is being turned into a TV show! Congrats – you’ve earned it. In fact, you get to co-write it. Write about the TV show based on your life or blog."-Wego Health

Welcome to "The TiffanyandLupus Show"! An authentic talkshow that airs every Sunday at 8pm Eastern Time. This upcoming weeks topic is: Five Steps to Go From Lupus to Living!

I'll be speaking on FIVE simple steps that will take you from lupus to living. Wondering exactly what that means? No worries, I'll explain it to you. There are FIVE easy steps I practice often that help me overcome the wear and tear that lupus has on the mind & body. As we all know; positive energy always overrules negative aspects at anytime!

I'll also be interviewing guests on the show who would like to share their 5 steps to go from lupus to living with you. On our fabulous guest roster is: La Lupus Lady who is a wonderful lupus advocate from California. Her favorite inspirational quote is, "Passion is contagious; Lupus is not!". Next we will have the author of the Spoon Theory herself in person, Miss Christine Miserandino who will speak on how she created The Spoon Theory and how it can help you explain what lupus life is like to your family and friends.

Our super secret surprise guest is Shante & Cori Broadus! Yes Snoop Dogg's wife and daughter. As some of you may know Cori was diagnosed with lupus at the tender age of six and has been a warrior ever since! Shante; Cori's mom sits on the Lupus LA board and is a huge supporter of lupus awareness & funding research. Today twelve year old Cori will discuss what lupus life is like; how she manages each day as well as performing her new single, "Do My Thang" showing us that lupus doesn't have to stop you from reaching your dreams and making it a reality!

Any thoughts on today's show? Who do you want to hear more about? What did you think of Cori's new song? Post your thoughts; I wanna know!

*: This post was written as part of NHBPM – 30 health posts in 30 days:

Don't forget to tune in next time where I'll be writing a letter to the 18 year-old-me. Oh I'm nostalgic just thinking about it! Xoxo

My Future Books

Today's Wego Health Writer's prompt is: Titles of my Future Book

 "Say you’re writing a book about your life, community,
condition, or Health Activism. Come up with 5 working titles and a quick book jacket
synopsis."- Wego Health
After much pondering I thought of what my five future books would be...Educational health guides with a sprinkle of my Latina heritage; yes this means a spicy novella. A mermaid inspired "me" because well who wouldn't want to be one! A self love guide, and a TiffanyandLupus cookbook! Doesn't it all just sound visually delicious!? Okay here we go...
  • What Lupus Taught Me
 Oh dear cheese on toast! Maybe she heard the rheuma-whats-her-name say the wrong word...though judging from that cold dead look in her eyes it's safe to say the doctor isn't just pulling my finger for kicks...perhaps it IS something serious. This thing called LUPUS. Well, it's time to pull my girl britches up; whip my fiercest wig and rise above the pain, and the best part is I get to share it all with you!

  •  How to Make Your Doctor Listen!
Ever feel like all your doctor visits are a blur? Do you spend most of your doctor visit in the "waiting room" only to spend 10-15 minutes with your MD before you're rushed out the door? Here's an easy-peasy guide of the: What, where, when, why, and how's of being an expert patient! Learn the skills to become the exceptional patient and gain the respect and proper care from your physician.

  • How to Get From Here to There: A Guide to Self Love
We're going to take a journey; one that's less traveled but leads to happiness. Before we embark I'm going to need you to be completely honest with yourself. This journey is all about YOU and how to leave the emptiness and pain behind and start loving the person we find within. All you're going to need is a mirror and perhaps a pen and paper. Are you ready? Are you prepared to shed the self-hate, longing, and judging eyes you bestow upon yourself? Grab your mirror and join me for an enlightening journey of self. It will be a bumpy ride but it's also one you'll always remember.

  •  Eating at Tiffany's
"Food should always deliver orgasms; anything less is a crime!"                                       Here you'll find Tiffany sharing her favorite authentic recipes. Each one of them full of sass, flavor, and nutrition...much like Tiffany herself. From fatigue-fighting salads and smoothies to mouth-watering lasagna and scrumptious desserts. You can find it all right here. Healthy food should still taste amazing and Tiffany is here to prove that!

  • The Mermaid & The Mercenary
Silently sliding amongst the rocks; Alexander held his breath and settled in for a long moonlit night of waiting. His orders were clear. On the third crescent moon of the fifth of September; a pure soul will sing of true love you'll always remember. Shall the siren finish her song; your mind, body, and soul shall be hers and belong. Gritting his teeth he took a closer look...her short tapered onyx tresses seemed to gleam in the moonlight. Wait, what?! Pffft! He would not get all dreamy over some vixen who was to be the death of him! He clenched his teeth around his solid curved blade and inched closer. He was almost there....a few more steps and it would all be over. Holding his breath he inched his muscled bicep back and prepared to strike at the base of her neck...with each lulling syllable he felt his heart clench tighter. Sweat dripping down his back he pressed on...the curve of her back seemed to dip deliciously into the most beautiful kaleidoscope of colors he'd ever seen. Her skin was a warm cinnamon that reminded him of snowy nights, toasty fires, and hot cocoa. He could almost taste her...
*This post was written as part of NHBPM – 30 health posts in 30 days:

 I hope this was as fun to read as it was for me to write! Which titles were your favorite and why? Were there any that didn't catch your interest? If you had the opportunity to publish your own book what would your title and synopsis be?

 Loving you, Stay strong!
xoxo, Tiffany

Patient Advocacy in Motion: ePatCon 2011

I've collected all the amazing video footage from e-Patient Connections 2011 and placed it all here for your viewing pleasure. Below you'll find interviews hosted by HealthCentral's Amanda Paige as well as some great video clips of me captured by the charismatic blogger Mark S. King from My Fabulous Disease.

Take a look at this remarkable video put together by HealthCentral featuring some of the empowered patients who are taking a stand to advocate for their illnesses and the rights of all patients across the globe.

Don't they inspire you to jump up and get cracking at finding the nooks and crannies that need repairing in the health care system? Okay okay, I may be a little overenthusiastic but let's get serious for a moment. If we don't take the initiative to be our own health advocates how can we expect someone else to do it for us? We can't leave everything in the hands of our physicians; responsibility has to start somewhere and it might as well start with each of us. Now on one's asking you to get crazy and light a bonfire at your next doctor visit. (though I'm sure that'd get their attention!) It's much simpler than that. Becoming your own health advocate is so much easier in this digital age. Everything is available at the touch of a few taps of a keyboard or mouse.

Also featured below are each of the empowered ePatients who sat at the roundtable to construct a draft for the Digital Patient Bill of Rights and how you can contact them. ~> HERE

Last but not least you can view me; fellow Wellsphere lupus blogger speaking with Healthcentral on how social media has helped me overcome the stigma of having an illness and finding support online. Here I share the inspiration behind the Facebook "Friends Against Lupus" page and why I chose that path I did on my healthcare journey and what I hope to see in the future of healthcare!

So what do you think about all this talk of patient advocacy? Do you disagree with what I said? If so what would you have said differently? What are your thoughts on the "Patient Bill of Rights"?