There's something magical about crafting and creating something from piles of bits and bobbins. Maybe it's just me always being in touch with my inner glitter girl, but if this resonates with you let me know I'm not a mad woman with a penchant for things that sparkle!
On this particular crafting day I was in Washington DC on business. I'm not just a Lupus Warrior; I'm also a ePatient Healthcare Advocate! What does THAT mean you ask? I'll tell you! Being an "ePatient" means that you've decided to stop being a passive patient and make a strong commitment to yourself to be encouraged, engaged, enlightened, and if need be electronic about your own health! I mean why wouldn't you? If you don't take the initiative to be informed about your health then how can you expect anyone else to? It's your life, you've only got ONE! So take charge and go from passive to ePatient!
I had thee amazing opportunity to stay with my ePatient sister Jess Jacobs in Washington DC for National Health IT week. I'd been asked by the ONC (Office of the National Coordinator for Health Information) to give a presentation on the importance of patients having access to their health data online, I called it "Let The Patients Help!"
I never thought in a billion years that I would be asked to represent the patient voice for over 5 million people worldwide, especially in the capitol of America! While having funtastic "Get Messy" crafting time with my ePatient sister Jess, I began to think about all of thee remarkable pioneers who campaigned and raised their voices for worldwide change right in Washington DC. There are so many to choose from, but the one who resonated with my soul the most was Martin Luther King Jr. with his 'I Have A Dream' speech. In spite of all the trials and tribulations he had endured as a Arican-American man living in America he had STILL dreamed of great things to come! I'm inspired by him every single day, hence my statement for this weeks Get Messy Art Journal pages, " I have a Dream, to Inspire." I absolutely LOVE my birthday Polaroid camera from one of my darling cousins, snapped some stills of The Little Mermaid 3, tossed some glitter and BOOM, I got MESSY!
I hope to inspire not only those living with lupus, but also doctors, hospitals, organizations, and countless others. It is my dream that every good deed I put out into the universe blesses someone with the will to go out and do good things in the world. From a young age, my mother always taught me to do the right thing. My favorite quote I live by was passed onto her from my abuelita. She said, "If there is something missing, BUILD IT. If there is a void, FILL IT. Or else YOU become a part of the problem."
What are your dreams and aspirations in life! Share them with me! Speaking them into existence is the first step in believing in oneself. So tell me, do you have a dream?